First, number one. This is the hardest one because stress and chaos are impossible to avoid, particularly in my life it seems. We just moved across country with a school-aged child. So what’s so stressful about that? But before that crotchety synapse kicks in, I think about how fortunate we are that we can work remotely, that our child is adaptable, and that we found a nice place to live. That kind of stuff.
Next on the list is setting some boundaries with folks who need some boundary setting in order to get well with ME/CFS, which is pretty much everyone. This is as simple and as difficult as needing to know when and how to say the four letter word known as “no”. In regards to trying to do it all: Is it worth dying for? So it”s actually kind of comforting for all in a way to know that you’ll still be around for a while to tell them no.
Last is to get lots of rest. This of course means again listening to yourself most likely, not getting too manic about getting things done. Find a way that helps you go with the flow on a daily basis no matter where you’re at physically. Try somehow to find a rhythm, even if it’s a cup of non-caffeinated tea with your feet up for twenty minutes with the door closed (locked?). Go ahead, live on the edge! Whatever is needed. Just make sure you find a way to recharge that works for you. Daily.